Give4Gav is an organization designed to help children affected by Spinal Muscular Atrophy ("SMA"). SMA is a genetic disease that has no current treatment or cure. SMA causes respiratory failure due to low muscle tone and is the leading genetic killer in infants. Give4Gav was founded in 2010 by Brad and Crystal Huffman and Amber Norton. Brad and Crystal lost their son Gavin to this tragic disease June 22, 2010.
Tuesday, April 27, 2010
Showing Improvement
Gavin did so great with his Occupational Therapy this morning...She thinks he is getting stronger. I'm so proud of my boy!!! Now, we just need to get him off the oxygen during the day :)
I love Gavin...I love it when he smiles at me and giggles...and I pray for a miracle everyday.And Nathan says that "Gavin is his bestest little friend".We just won't give up hope.-Amber
Crystal, hello.. This is Josh's sister, I want you to know my family continues to pray for you, your husband and lil man daily..Also it is a small world, my husband works with your dad.. Gavin is absolutely beautiful and you can see he is a fighter.. If you ever need someone to talk to you or just a get away you can e-mail me at stephaniefuller2531@yahoo.com!!!My daughter was diagnosed with Transverse myelitis back in Aug '09..This is infection and lesions in the spinal cord.. It has been a long battle and I know how you feel!!! Keep your head up beautiful and may GOD be with you and Gavin~ with loads of love <3 Stephanie
Next Giv4Gav Benefit Concert June 4 2011 @ the Greenwood Amphitheater. All proceeds will go to help a child with SMA. Please plan on attending. Thanks to everyone for your support. For more information please email me at Huffman321@comcast.net
The sale will be on Friday, May 21st from 7am to 10pm at 1663 Bluegrass Parkway, Greenwood, IN, 46143 (view map). There will be plenty of items for sale and many baked goods. If you have items you would like to donate, please contact Kylei Poff at kypoff@att.net. All proceeds will go to Gavin’s medical expenses, to an SMA specialist, to help raise awareness and find a cure for SMA.
Benefit Concert and Fundraiser
There will be a Benefit Concert and Fundraiser for Give4Gav at the Greenwood Amphitheater on Saturday, May 22nd from 12 noon to 5pm (click here for directions). There will be bands playing, including Common Ground, Crash 21, and more. Lots of family fun; face paintings, games and a raffle! No charge to get in, just donations. It will be a fun day for a family outing! If you would like to be a sponsor or donate to Give4Gav’s Benefit Concert, please contact Amber Norton at 317-535-8245 or go to any Huntington National Bank. All sponsorships $100.00 or more will get the name of their business displayed on a banner at the fund-raising event on May 22nd at the Greenwood Amphitheater. All sponsorships $200.00 or more will get the name of their business on the banner and t-shirts. All proceeds will go to Gavin’s medical expenses, to an SMA specialist, to help raise awareness and find a cure for SMA. Every little bit helps!!!
gavins so cute, god bless:)
ReplyDeleteHe is very cute. God bless you and ur family.
ReplyDeletePraying for Gavin!
ReplyDeleteI love Gavin...I love it when he smiles at me and giggles...and I pray for a miracle everyday.And Nathan says that "Gavin is his bestest little friend".We just won't give up hope.-Amber
ReplyDeleteCrystal, hello.. This is Josh's sister, I want you to know my family continues to pray for you, your husband and lil man daily..Also it is a small world, my husband works with your dad.. Gavin is absolutely beautiful and you can see he is a fighter.. If you ever need someone to talk to you or just a get away you can e-mail me at stephaniefuller2531@yahoo.com!!!My daughter was diagnosed with Transverse myelitis back in Aug '09..This is infection and lesions in the spinal cord.. It has been a long battle and I know how you feel!!! Keep your head up beautiful and may GOD be with you and Gavin~ with loads of love <3 Stephanie
ReplyDeleteNext Giv4Gav Benefit Concert June 4 2011 @ the Greenwood Amphitheater. All proceeds will go to help a child with SMA. Please plan on attending. Thanks to everyone for your support.
ReplyDeleteFor more information please email me at Huffman321@comcast.net